I already don’t like this post, and I haven’t even started writing it. It goes against my blogger ethics to share personal stories like this with a broad and unknown internet audience, but I’d like to say that I have obtained permission from each person featured in this post. My friends pictured here want your help. I want your help. We both want the first world to know the rural third world reality.
Please read, and feel, and respond. I’m praying for a flood of advice from real live Peds and PTs, ER nurses and good Samaritans.
~~~
I started to post more info about this on facebook and realized that I do not have the space (or patience of thumb typing) to make this happen.
Let me start with the background info: a story of three burn victims.
Kalunga tripped into a pot of boiling water and burnt his
leg from hip to toe. His mother also took him to the clinic where they also
gave him acetaminophen and washed the wound with bleach water. After being discharged, his mother took him
to the clinic for regular cleansings with bleach water during which Kalunga
screamed so badly at the pain, breaking his parents’ hearts. They could not
stand watching the clinical cleaning procedure. They kept him at home and used
ash to pack the wound and after a time it got severely infected. I offered to
help him clean the wound and kept Neosporin on the area, re-bandaging his leg
twice a day for two weeks. His skin did heal, though the area around the knee
has limited range of motion and he limps a bit when running.
Bana Miri lost consciousness and fell into an open fire. No
one knows how long her arms were laying in the fire, but her flesh was
incinerated to the point that we could see bone. She was referred directly to
the hospital where they gave her acetaminophen and washed her wounds with
bleach water. After a few days, she was discharged. The family cared for the
wounds with toothpaste and ashes. After a few weeks, the family called me
because her wounds were so rancid that anyone who walked into the house
commented on the rotting fish smell. I took her straight back to the hospital
where they continued to soak her hands and arms in bleach water. After a few
more weeks of negative progress, they transferred her to a hospital in Kitwe
where the doctors started talking amputation. The family pleaded that she be
able keep her hands, so after getting the infection under control, the hospital
sent her home. Bana Miri no longer has any functional use of her hands.
Do you hear the commonality in each story? Tylenol, bleach,
end of clinical care, ashes and toothpaste, infection, and permanent damage.
When Bronwyn was burnt in similar manner a few weeks ago,
many people urged me to take her to the hospital. I hope you can appreciate now
why I opted not to. If Tylenol and bleach were the solution, I could have done
that myself. Thankfully the water that fell on her was not fully boiling and
her skin never burst and nothing got infected. We are thanking God for this
mercy.
But the prompting of this post comes from a more recent
story. Please keep reading.
Four days ago, Patience’s sister dropped a pot of boiling
oil and the oil splashed across Patience’s legs. Her mother was not home, but the
neighbor lady immediately covered the burned area with toothpaste and stared
walking with her to the clinic. At the clinic, the nurses scraped the toothpaste
off and kept the wound clean with bleach water. One tube of Silver Sulfadiazine
was in the cabinet (and no one knows where it came from, so I’m calling that a
miracle) which they put on the child’s knees until the tube ran out and they
sent her home. (Note that Silver Sulfadiazine did not exist in Mansa at the
time of the first three burn cases, which is why there is no mention if it in
their stories.) Now at home, her mother is too afraid to hurt her child, and
she has asked me to be the home aid nurse, which I am certainly not.
Naturally, I am terrified. I am terrified that her knees
will not heal properly, that she will not be able to bend them. I am terrified
that she will be in unnecessary pain. I am terrified that I do not know what I
am doing. As I asked for help on facebook, many responded that I should take
her to the hospital. I hope that the above stories shed some light on that
option. The one difference in Patience’s story is that I now know about and
have access to Silvadene. A newer pharmacy in Mansa now carries it and, after
Bronwyn’s burn, I stockpiled. (It’s a shame that I am willing to buy this
medicine, but the Ministry of Health is not. But that is a post for another
day.)
Please know that all of these people are dear to us. Michael
is named after my husband. Kalunga has the most contagious laugh and has been
on my top-five-people-on-the-planet list for a long time. Bana Miri is the wife
of one our former staff members (he stopped working with us to care for his
wife full time) and she is the BEST. Patience is one of Bronwyn’s friends –
they have played together since birth. These people are important to us – they
are not just names or pictures or case studies.
But I am not a medical professional and other questions
remain. Questions about the sloughing that the clinic seems obsessed with –
scraping back the clean-but-dead tissue until her knees bleed. Questions about
their wrapping technique. Questions about the Silvadene application. I don’t
want this little girl to end up like the others. I cannot distance myself
emotionally from this situation either. Her cries are fierce and I’ve wept for
her pain. I look at her laying miserable and imagine Bronwyn and I can’t not commit to her healing.
There are complicated sub-stories woven tightly into each of
these burn scenes. Stories of poverty and the daily hazard of cooking on fires.
Stories of inadequate health care and sub-par patient education. Stories of apathy
in resource sparse locations. Stories of traditional medicine and witch doctors
and mothers that would do anything – try anything – to make their babies feel a
little better.
And these are stories that also need to be told and hopefully
will be told at some point. But right now the clock is ticking and I have one
hour, thirty three minutes until I am due to arrive at Patience’s house to
“help” her mother and my cheeks are tear stained and my hands are trembling.
This is me reaching out. Who will skype facetime with me
from inside Patience’s house? Who will look at pictures and advise wisely? I
have access to google and I am using it. I’m looking for specialized advice for
individualized care, not because I think webMD is wrong but because I can’t
stand being involved in another burn victim story without reassurance of a qualified,
live person telling me that this is the best anyone could do.
Please.
And thank you.














